Moving On

Jon and his Grade 2 reader

PeterJon’s reading programme, as designed by Tami, works like this: each day Jon reads two stories, and on a day when he can read the first one comfortably with no meaningful errors (and/or corrects himself on anything significant without assistance), he “moves on” from the first story and he is introduced to the next story. Leapfrogging, basically, with one familiar story always there.

Tami has had a plan for Jon’s reading for the past three years, and Jon has been up to the challenge. But Tami hurt her ankle badly in March, and was away for about 8 weeks. Despite the best efforts of her assistants, there hadn’t been much reading at school, and we did what we could on the weekends. When Tami returned at the end of May, Jon was about 120 pages short of her target for the year.

We undertook to read with him in a second session daily, which was pretty intense: previously when we’ve tried it Jon just couldn’t see the page–his eyes were tuckered out for the day. But in May and June, Jon responded well, fighting exhaustion, humidity and hormones, and his first bout of academic pressure. Towards the end, he was so strong that he would move on in both stories at the same time. And last Monday, he completed the 120 pages, and finished the Grade 2 reading program, and started the Grade 3. With two days to spare. Yay, Jon!

(He’ll get a little break during the summer, but Tami has supplied us with lots of reading and spelling materials. No backsliding!)

3 Clown Fish swimming

Jon (For this assignment, Jon picked a photo of a bunch of clownfish. After the first half-dozen sentences, Tami asked him a leading question, “if you could play a game with the fish, what would it be? How would you play?” Then, “what happens when you get bumped? Think about your computer games; do you change into something or get special powers? Write about it!” —L)

Do you like to see 3 clown fish swimming? I like to! I love going for a swim with the clown fish. I am about to splash the fish. The fish are going to get wet. I love to go floating with the fish. I am going to play The Floating Fish Game. Do you like to play the Floating Fish Game? First the fish are going to float all the way to their house. The fish are going to catch us. The fish are going to bump us. I love going to change us into under water starfish. The starfish win the game.

Jon

My Weakend

Jon I went to Grandma and Grandpa’s house to swim. When I got out of the pool I used a towel to dry me off. I like to push Dad on the bum then Dad jumps in the pool. Dad does a cannonball. I went to buy strawbairese with my Daddy. The strawbairse look good. They taste yummy. I was going to play in the sprinkler. I was going to get wet. I was going to have a drink of water from the sprinkler. Daddy turned on the sprinkler. It was a great day.

Jon

Talking to Jon

Laura Because of Jon’s disabilities it’s sometimes hard for people to figure out how relate to or talk with him. This is a very informative and detailed list that Jon’s teacher Tami gave us to educate acquaintances, friends and family. The first five tips are the most important, and specific to communicating with Jon; the rest of them are also important, but are more general parenting/babysitting/teaching pointers. A big, heartfelt thanks to Tami for putting these together!

A little too precocious…

Peter So Jon has been somewhat emotional these days. He’s had several tantrums of late: explosive, sometimes physical, and very intense.

The weird thing about them is that he was turning on a dime. After the Sunday one, he turned around and did 16 pages of tough reading homework; cheerfully, anger completely evaporated.

Now, Jon has had tantrums before, and even waves of tantrums, but that was years ago. And all through all of them, none of his teachers had ever seen anything; they could barely believe that such an angel would ever do this.

This included Tami—until Monday, when Jon decided to try his new attitude at school. To sum up: demanding and surly, then kind of weepy when challenged on what was going on and why he was doing this.

He has been under a heavy workload at school. And there was the humidity. And he’s going through a new social phase, so he may be testing the waters. But we suspect there’s something else too.

Tami mentioned that it seemed “almost hormonal”, and the EA’s have noticed some other things that lead us to a new fact. New to us anyway, and we like facts. So how is it that we never learned—and no one ever told us—that it’s common for kids with CP to hit puberty early?

When I heard this interesting fact, I nonchalantly googled “cerebral palsy early onset +puberty”, thinking maybe one scientist had a study or two. 42,100 returns. Oh crap.

It’s called precocious puberty. (Of course it is.) Common in kids with brain injury, including kids with autism and FAS. For the boys, it tends to start early and end at the usual time, and the likelihood is inversely proportional to the amount of body fat. Oh craaap.

Looks like the future is now. With more coming soon. Anyone got some raw meat and a chair?

What happened after I got off the bus

Jon Jon sure loves his Spyro the Dragon video games! In the “Sunny Flight” level Daddy does the steering while Jon mans the gun. And Jon was showing Bachan how to get a dragon, not the other way around. —L)

After the bus goes away like this
voooooooooooooooooooooooooooooooooooommmmmmmmmmmmmmmmmm I do some reading. After I do some reading I get some play station. I do spyro one. In spyro one Dad goes to Sunny Flight. In Sunny Flight Dad gets a train. Dad gets another train. Batchin showed me how I get a dragon. I do Spyro two. In Spyro two I go to Metropolis. I get the ox. I love going to the first elevator. I am about to go to the next elevator. I’m about to go get the space ships.

Jon