Short note; no operation yet. Since we were admitted via Emergency, we have reasonably high priority—unless higher priority emergency cases come in. Guess what came in! They are hoping to operate tomorrow, but we don’t know when.

The most aggravating thing about the waiting was that Jon had to be food- and water-deprived as of midnight last night in preparation for the operation, and so he had no food between 10 PM yesterday until 7 PM today! Poor guy—he behaved like a gentleman considering that his blood sugar must have been at rock bottom all today.

We’re in a new room now, hopefully for the rest of our stay: 5A11 (that’s Sick Kids, Reid).

Laura reports that they moved to a room at 2 am. Jon is in 5C68. [ Jon’s been moved to 5A11 ]

Jon got an Advil around 6 pm, but nothing after. As he tried to sleep, the emergency pages over the loudspeaker–which begin with a loud ping, not unlike the airplane chime that started all this–were driving him bananas. Laura reports that by midnight he gave up on frustration and got really wide awake and giggly. Jon was given Tylenol with coedine at 2, and finally slept. Around 3 am, a page echoed around the upper hallways, and you could hear babies howling and heart machines pinging from all the young ‘uns it awoke, but Jon was way, way out! Poor guy is probably getting the first decent sleep in a week.

Laura only joined the caffeinated masses a few months ago, but it was a good thing she had that cappucino at 10 pm, because she was asked to provide a detailed history of what happened at the nurses station at 2:30 am.

It was no muscle spasm. After a brief meeting with his doctor at Bloorview, we whisked Jon to Sick Kids’ Emergency, where X-rays have revealed a huge fracture.

Here’s the deal: remember his last operation? Well, the hardware they installed has drifted down as he grew, and the shock of that sudden leg bump has caused the blade plate, originally in the femoral neck, to fracture Jon’s femur.

They’ll be doing emergency surgery sometime tomorrow, and it sounds as if they are still deciding on the best option, given that he bears weight on it (some kids don’t, and I guess that changes the equation). We don’t know what we’re in for, except that it will be the rest of the summer convalescing. And that he’ll be in much discomfort.

Poor Jon. It must have been excrutiating, and here we were saying it should be improving.

How did Children’s in B.C. blow the diagnosis? Maybe the angle of the x-ray, maybe the fact that in some kids a fracture isn’t immediately apparent, maybe that they had nothing to compare it to. I don’t understand.

We’ll need to get a social network going. Please feel free to visit, ’cause we’ll be here!

Laura is in Emerg overnight with Jon, I returned the car home and will return in the morning. We’ll be in The Room tomorrow.

Late-breaking note: Why was Jon always pointing to his banged knee as the source of pain? Because hip pain often radiates to the knee! Now you know (well, now we know). Apparently this is common knowledge in medicine.

Okay, suddenly there’s trouble. We started putting together a big post celebrating our vacation, but I’ll post what we had written, and that will have to do for now… –P

We are back from a two-week vacation to Lotus Land. It was a lovely vacation, idyllic, even—until the twist ending.

Part the First: Vancouver
We landed in Vancouver July 3rd. The Vancouver portion of the trip was fairly low-key: Mainly seeing friends (hi Alayne, Leanne and Brenda!) and family.

The convenience of the very accessible B-Line buses

At Granville Island, where we witnessed a The Birds-like attack of seagulls on a girl with a heaping plate of food; Bachan playing music with Jon

Playing ball with Teagan. Jon got quite used to saying goodnight to her, and being greeted in the morning…

Visiting Valeria at Lee’s Candies, and a walk in Pacific Spirit Park

On Tamo and Midori’s trampoline

Not pictured: Jon’s delight at the Seabus and disappointment that we only took it once (Eduardo drove us back from North Van);
Tamo getting his knickers in a serious knot from losing to Peter at crokinole;
Midori being absolutely great friends with Jon.

The view from Spanish Banks

Part the Second: The cabin
We opted to take a flight to Campbell River to forgoe the lengthy ferry-ride and drive up Vancouver Island. At the (miniscule) South Terminal at Vancouver airport we got caught by security for carrying in Jon’s backpack a—gasp—tiny wrench and allen key for Jon’s wheelchair!! Never mind the fact that we managed to get from Toronto to Vancouver with the same wrench and key in the same pocket without getting buzzed; I’m not sure exactly what they thought we were going to do with them—take apart the plane, maybe?

Thence followed five days of sheer loveliness better described in pictures:

Lots of relaxin’: Laura with cuddlebug Teagan; Tara with Jon

Jon’s first fish!

Jon second catch–really!–was this shark, a dogfish, which he reeled in with help from Daddy, who is holding it not for credit, but for scale. Note the dangerous spikes on the dorsal and adipose fins.

Jon enjoyed the boat. The fine, dangerous teeth of the dogfish. But not so dangerous as the teeth of Jon, which joined the teeth of 10 of us in eating two dogfish as fish and chips.

Laura with a rockcod (yum yum); Peter with a lingcod (which had to be thrown back, alas, being under the required three-foot size)

Grandpa fishing

Prawn traps; prawns the size of young Shetland ponies

Moonsnail “peeing”—actually just expelling water—as it squeezes itself back in its shell (lotsa laffs from Jon)

Tidal pool life galore!

Logs at low and high tide, from the same spot

One biiiiiig log, filled with iron spikes and steel cables, that we finally put out to sea at a very high tide. It took the tide, brains, brawn and human couterweights to get that log out, and then four of us swimming with it against the waves at dusk to put it out for good. Happy memory of Sev yelling to us (Tara, Tamiko, Midori and Peter) from her boat, “You guys are hardcore!” 🙂

The winning team of a fiercely competitive game of Cranium involving everybody but Jon

Midori relaxes as Laura, Tamiko and Jon enjoy the sunshine!

Campfires in the evening!

The view

Part the Third: Laid up
We left the Campbell River Airport on Saturday the 15th, bound for YVR and a connecting flight home. During the flight Jon hit his knee against his tray when the airplane made one of those seatbelts-on alarms that go “ding”. We had a two-hour wait until our Toronto flight, so we were cruising the eateries in Departures, looking for lunch. Jon was progressively hunching more and more in his wheelchair until his head was below his knees. When we tried straightening him up he started screaming (and boy, can he be LOUD). Finally we took him out of his chair, laid him on the floor (still screaming), called First Aid. Upshot: Jon and Laura ended up in an ambulance to Children’s Hospital. Peter followed with the wheelchair in a taxi paid for by the airport. (Both Air Canada and YVR airport, by the way, were wonderful and very accommodating. No problem getting an alternate flight. Colour us very impressed.)

Luckily, despite our initial fears of 1) seizures and 2) bone fractures, it was diagnosed as a muscular issue. Jon’s muscles are always quite tense (hallmark of cerebral palsy), and he gets even tenser when he’s nervous. Add to this the pain of banging his leg, fear of the airplane noises, and sheer tiredness (he got to sleep very late that night) and his leg went into huge and continual spasms. At emergency he got a dose of muscle relaxant and Advil and we were told not to fly for about 48 hours. Finally, on Monday we got to Toronto. Jon was great on the plane (would only say “ow” quietly when his leg spasmed); once we got home he felt free to let ‘er rip with huge amounts of overtired and pained screaming and crying.

Jon is not much better now, though we’re not sure how much of it is true pain and how much is tension from the pain. Jon has missed 4 days of summer camp, and we’re off to the doctor today to see where we are.

About as active as he can get, poor guy.