We’ve been looking at a lot of new gear for Jon in recent days. Some good, some—well, in the end it will be good.
Most exciting is the fact that Jon is being prescribed a walker! This video features a demo model of the Nurmi Neo by Otto Bock. We tried another walker that was heavier and more restrictive, but this one was better, and so the byzantine process to get one has begun. 🙂
[Editor’s Note: As of July 2012, I’ve found a second video from the same session!]
Jon should be getting his new AFO’s in the next few days. We don’t talk about these much, but they’re the custom braces that keep him from pointing his toes and losing range in his ankles and achilles tendons. Jon’s isn’t especially bad in this department, but they’re standard issue for kids with high tone in their legs, and he wears them daily at school.
We’ve started looking at new trikes. Lots to choose from, lots of vendors too. And the theraputic trike prices have come way down from the $2500 for his first therapeutic trike 5 years ago, so that’s nice. More comparison shopping to go.
And last up was the orthodontist, where we chatted with her about the xrays (Jon isn’t missing any permanent teeth like Laura) and did up the game plan. Step #1: All of Jon’s baby eye teeth have to go, to make room for his front teeth for the short term. And in 9 months or so the hardware starts.
And I didn’t even mention the fact that he’s growing so fast, we’re in preliminaries for a new wheelchair!
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James says:
April 16, 2008 at 1:14 pm (UTC 0)
That’s a nice looking trike! Lori’s also a trike rider — she rides this one.
One place that might be good to talk to about trikes is The Urbane Cyclist on John Street south of Grange Park (north of Queen). They have a lot of experience with non-traditional bikes (they are where Lori & I got ours). I don’t know if they’d be able to advise you about therapeutic trikes, but they’d certainly be able to service them!
Pamela Cook says:
April 17, 2008 at 9:27 am (UTC 0)
Wow Jon Great walking! I am so proud of you!! You must be so proud of yourself! Look you have alot of things going on Jon your teeth your new trike and your AFO’s. Wow Jon your growing up to fast.