AFO Socks

Laura If you read the title and went “Whaaa?” this post isn’t for you. If you do know what that refers to, and perhaps were even looking for some, you might find this useful.

An explanation for the “Whaaa?” crowd: AFOs are ankle-foot orthotics, which helps people with leg weakness (like Jon) keep their ankles from flopping over when they step. They are annoyingly big—we have to buy Jon two different sizes of shoes: one size for just his feet; another, two sizes larger, for wearing with his AFOs. Since they are so large in cross-section (they consist of a fiberglass shell around a silicone bootie that encloses most of his foot) it’s quite hard to find shoes to fit that don’t turn into clown shoes. Because of this we’ve been using Crocs—pug-ugly and passé, but stretchy and easy to slip on. We have found a US online company that sells nicer shoes specifically for AFO wearers, but predictably, they’re expensive—especially for a rapidly-growing young man.

row of AFOs
A lifetime of Jon’s AFOs in our front hall

Another problem is finding socks that can be used with AFOs. They have to be fairly thin (no sport socks) and knee-length to fold over the tops of the AFOs (shorter socks can bunch up, and the elastic tops tend to chafe under the shell.) Unfortunately, most of the socks I found online look like therapeutic socks: white, synthetic (in that support-hose, bad kind of way), and shockingly expensive.

AFO Sock logo
But I found a source for Jon’s socks, with the catchy name of—wait for it—AFO Socks! It’s run by an orthotist out of Ottawa who specializes in making pediatric orthotics. Some things I like about them:
a) they’re from Ontario (no duty and low shipping costs).
b) the socks are inexpensive ($5 CDN a pair) and cotton blend, with a real heel (not tube-socks) and no toe seam.
c) the socks come in lots of colours (admittedly only two—plus white—for older kids, but that’s better than just white.)

Alas, AFO Socks only sells pediatric socks; when Jon gets bigger I’ll have to find an adult sock supplier.

Five days of camp

swimming

Jon August 23/09 Edited

My favorite thing at camp was archery. I almost hit the target.

archery1

Another day I went canoeing with Hannah. We went through 2 locks.

canoe lock

At the end of the day we played backyard games. I played Big Ball soccer and I also bowled.

Hillbilly bowling
“Hillbilly bowling.” Jon is dressed up like a referee.

Every night we had a camp fire. I roasted marshmallows. We sang a relaxing song called Angels and also a song called Friends. I had five great days at camp.

Jon

Summarized from Jon’s camp journal

(These activities are summarized from the journal that Jon and his camp counsellors wrote each day. —L)

Day 1 (half-day after drop-off)

Big-ball soccer. Sponge War (a nice, wet event for the hot weather). Canoeing (counsellors dressed like pirates). Evening campfire and songs. “Zoo animals” broke loose and campers had to catch them. Back at the cabins, story time.

Day 2

First full day at camp. Swimming, arts and crafts.

swim3

painting

Boys then left for “out-trip” in canoes (two campers, two counsellors per canoe), where they went through two locks on the Rideau. Campfire with roasted marshmallows and s’mores. Jon recited stories from Dr. Seuss’s Sleep Book for everyone. Overnight in tent.

Day 3

Chocolate-chip pancake breakfast! Canoed back to camp. Sailing: Jon and counsellor in 2-sailed boat (apparently faster than the other ones). Evening: Robin Hood games, including Jon’s favourite event: archery!

archery2

Day 4

Kayaking and story-reading on the water. “Marble art”, which involves cut-out paper, paint, containers and marbles. Swimming in the lake, playing “Siesta Fiesta” (which is like “Marco Polo”). Played Disney Cranium.

cranium
Playing Cranium. Counsellor holding up sculpture of Pinocchio

Big-ball soccer and basketball. Campfire, story-telling and singing.

Day 5

Last day! 30-minute canoe paddle to get to the beach. Sand-castle building, swimming.

sand play

swim2

Beach lunch, come back for archery. Closing banquet and feast. Camp Carnival, dress-up, dancing, “hillbilly bowling”. Final campfire and songs.

Jon and gang
Jon and the gang

Mission Accomplished!

Peter Laura We got back from the big trip three days ago and it’s taken us until now to wrap our heads around the past week enough so that we can write up a post.

To fill out what Peter obliquely mentioned in his Aug. 16 post, Jon got accepted into the Discovery program at the Easter Seals Merrywood camp near Ottawa earlier this year. This is a 5-day session for camp newbies (as opposed to the regular 10-day session), and the upper age limit was 12, so we figured that this year was now or never for Jon!

We were a bit trepidatious about sending Jon off on his own, and we certainly did our share of over-thinking the whole thing, which probably describes our whole life with Jon for the past 13 years. We’ve pretty much had to chart our own course with Jon, since no one else—not even health professionals—ever got a full handle on the scope and interactions of Jon’s challenges. But after 13 years of having never been away from Mom and Dad, it was time to start snipping away those apron strings.

Of course, when we saw the photo on the flyer postcard we received late last year it threw us for a loop for a bit:

postcard pic of kid in wheelchair on high wires
All this talk about cutting strings suddenly makes us nervous…

Since we had been told by friends and neighbours—very firmly—not to come back home for the camp duration, but to have a real vacation, we decided to explore Montreal and Quebec City; cities far enough away from Jon and yet near enough for our comfort.

Sunday, Day 1

Merrywood camp gates
Camp Merrywood gates

We said goodbye to a glum Photon Sunday morning (a big thanks to friend David for house/dogsitting). Jon was in high spirits during the 5-hour drive to the camp. A new audiobook (Charlie and the Chocolate Factory—a favourite), a lunch stop at Swiss Chalet in Kingston, and even the family winning the top prize in our iPod version of Who Wants to be a Millionaire added up to a chipper Jon. Once at camp, the staff took us around for a tour of the facilities, which looked very satisfactory to us. The campers’ sleeping quarters are 3 air-conditioned buildings, each of which has 4 beds per room and two rooms each of boys and girls. When it came time for goodbyes, Jon suddenly became, not sad; very serious and sober. Grave. Which pulled considerably on the parental heartstrings!

The campers' 'cabins'
Craft Hall at left; Meal Hall in centre; Jon’s “cabin” at right

By the time we got to Montreal we didn’t have a lot of time to do much more than check into our room (Hôtel du fort), take the Métro to wander around the rue St-Denis area and eat at Chez Doval, a homey Portugese restaurant. Food wasn’t fancy, but boy was it good! Peter had a grilled squid appetizer and red snapper; Laura had a roasted quail appetizer and a seafood casserole that contained the largest mound of lobster, clams, mussels, etc. on tomatoes and rice either of us had ever seen! No room for dessert.

Monday, Day 2

Checked out of hotel, picked up some bagels and lox from Fairmount‘s and headed out to Quebec City via the (so we were told) more scenic North route. It was okay, nothing special, except for a random exit from the highway to find a picnic spot, ending up at the little town Sainte-Geneviève-de-Batiscan for a very picturesque lunch.

Peter driving near the Batiscan river
(Mind you, the GPS got decidedly psychotic about the unscheduled pit stop!)

Laura at the car

Batiscan river where we had a picnic
The spot where we ate lunch

panoramic photo of Batiscan river
Panorama of Batiscan river. Larger version

We got into Quebec City mid-afternoon, where we settled into our hotel, the charming Auberge de la place d’armes, right on rue Ste-Anne smack in the middle of Old Quebec. Our room was cozy and clean, with hand-made, slightly funky furniture, decent amenities (free wireless internet) and, unfortunately, a very noisy but working air conditioner. (The hotelier profusely apologized about the noise; it had broken the day before and although they called a repairman, so had everyone else with problems in this first big summer heatwave.)

We ate dinner at the hotel’s restaurant, Pain Béni, expecting a touristy French bistro. Instead we were pleasantly surprised to discover delightful, imaginative food. We actually ate dinner at Pain Béni both nights we were there, as well as both breakfasts (included in the hotel price), and all were excellent. (There are other good restaurants in Québec, but none we found in our wanderings. All the other restaurants we came upon catered to white-bread tastes: lots of beef, spaghetti, and when a posted menu read “hamburgeois”, we kept on walking…)

Interesting olive oil dessert
An half-eaten example of the imaginative desserts at Pain Béni: Olive-oil ice-cream with scoop of grapefruit granita, pralined pine-nuts, drizzled with a balsamic vinegar syrup. Yum!

At the end of the day we wandered around the lower city, trying unsuccessfully to find where the Robert Lepage projection show was being shown. We figured the show was cancelled due to the thunderstorms that evening.

Tuesday, Day 3

Upon reading the tourist information in our hotel room we found out that the Lepage installation runs every day during the summer, rain or shineexcept on Mondays and Tuesdays. Dang. But what a show it seems to be, projected on 80 grain silos in the harbour, the size of 25 IMAX screens.

Off to tour the Citadelle, where we watched the changing of the guard, petted the regimental goat, and generally roasted in the heat (though with the humidity so high it was probably more a slow braise.)

Changing of theGuard and Batisse the regimental goat
Batisse, the regimental goat during the changing of the guard—how veddy British

Close up of goat with golden horns
Batisse’s golden horns. Peter’s thinking of getting his ears done this way.

Lots of walking around various streets of Quebec, eating lots of gelato, buying chocolate, and generally doing the tourist thing.

View of the St. Lawrence River from the Citadelle
View of the St. Lawrence River from the Citadelle. Larger version

Wednesday, Day 4

After check-out we decided to take a side-trip to Baie-St-Paul to wander, enjoy the little artist community and see an exhibit of costumes from Cirque du Soleil at the Musée d’art contemporain (B-S-P is where Cirque got its start).

Finally, a highway with some pretty countryside! Lovely rolling farmland inscribed by long thin rectangles, and steeper, wooded hills heading 3/4 km above sea level.

Gorgeous countryside going to Baie-St-Paul
Rolling hills on the way to Baie-St-Paul

Nice costume exhibit, some lunch at a local bistro and back to Montreal via the snore-inducing South route.

Our room at the Hôtel du fort was upgraded to a suite and free wireless; we suspect that they over-booked. Dinner was at l’Éxpress, another French bistro, but this one a superlative one. We had previously made reservations, which is de rigueur because the place was packed to the gills on a Wednesday night. People were still waiting at the bar for tables at 10:45 at night. (BTW, thanks to Marie-Louise for both of our Montréal restaurant recommendations!)

Thursday, Day 5

Check-out and off to the Musée de beaux-arts to see the Frédéric Back exhibit. Loaded up on more bagels, chocolatines and croissants aux amandes, then off to Ann and David’s in Ottawa for another scrumptious French-influenced dinner (a lovely duck confit), with Kevin and Heawon and Clay and Taeyun joining us. The interests of our friends and relations gelled so perfectly that while they chatted, Laura and I secretly joked about heading back to T.O. a day early! Thanks so much to Ann and David for their hospitality, food and lodgings too!

Friday, Pick up

Jon and his camp counsellors
Jon and his camp counsellors

Up early to pick up Jon from camp. Jon was very pleased to see us (BIG hugs), but was clearly happy as a clam at camp. On the car trip home he alternately watched his DVDs and listened to Chocolate Factory, but was even chattier than usual, talking very excitedly and loudly about anything and everything: TV shows, camp activities, lunch, DVDs, etc.; he was absolutely bubbling over with excitement.

Jon post-camp
What Jon looked like most of the way home

On his “Camper Experience Form” the counsellors noted that Jon was an enthusiastic participant in all the camp activities, co-operative and friendly, “and has a fantastic smile.” The fact that camp agreed so well with Jon is a HUGE relief to us. The first apron strings have been successfully cut, and this is maybe a good sign of future steps to independence. At the very least, it’s looking great for another (10-day) session at Camp Merrywood next summer.

Learning from our Cousins…

Peter For all of you eagerly awaiting it, the big camp/vacation review will be up later today. But, in the meantime…

To my utter shock and horror, I didn’t know this. As twittered and posted by Ze Frank it turns out that most of us have been opening bananas all wrong: we must learn from our kin, the monkeys. They do it the easy way.

This news is as big as our 2004 expose of T-shirt folding. 😉