Category Archives: Reads

Looking at a “laptops for kids” story

Laura Ever since we got our first Macintosh computer in 1989 our family has been quite devoted to Apple products (currently our household boasts four Macs, an iPhone, five or six iPods, and an Apple TV). Peter and I even regularly read blogs devoted to Apple news and commentary. One of things these sorts of blogs do occasionally is report news stories about companies or school boards ordering huge quantities of Mac computers. (This is a holdover from the grim years in the 90s when Apple was tanking and Mac devotees desperately grabbed at any indication that someone—anyone!—thought the products were worth getting.)

Thus the “Apple press” noted a recent article in the New York Times by Alan Schwarz, which described a program in an elementary school district in Mooresville, North Carolina, that basically replaced most classroom learning materials by laptop computers. The board issued MacBooks to 4,400 4th to 12th graders in five schools. The results were stunning: (all quotes from the NY Times article)

The district’s graduation rate was 91 percent in 2011, up from 80 percent in 2008. On state tests in reading, math and science, an average of 88 percent of students across grades and subjects met proficiency standards, compared with 73 percent three years ago.…Mooresville ranks 100th out of 115 districts in North Carolina in terms of dollars spent per student … but it is now third in test scores and second in graduation rates.

The learning process was also changed considerably, with the students using individualized software modules and learning at their own pace. Teachers taught students on a more individualized basis, with more of their time spent on weaker students. This had good results in surprising areas:

…[weaker students don’t have to] struggle at the blackboard in front of the class; this dynamic has helped children with learning disabilities to participate and succeed in mainstream classes.

The tech press and computer geek takeaway from this seems to be that computers in classrooms = good. But these admittedly stellar results aren’t just the result of computers per se; they also required a complete overhaul of the educational method, which necessitated some sacrifices (often unpleasant ones) to fund the program:

Sixty-five jobs were eliminated, including 37 teachers, which resulted in larger class sizes — in middle schools, it is 30 instead of 18 — but district officials say they can be more efficiently managed because of the technology. Some costly items had become obsolete (like computer labs), though getting rid of others tested the willingness of teachers to embrace the new day: who needs globes in the age of Google Earth? …

Many students adapted to the overhaul more easily than their teachers, some of whom resented having beloved tools — scripted lectures, printed textbooks and a predictable flow through the curriculum — vanish. The layoffs in 2009 and 2010, of about 10 percent of the district’s teachers, helped weed out the most reluctant… others [had to be convinced] that the technology would actually allow for more personal and enjoyable interaction with students.

“You have to trust kids more than you’ve ever trusted them … Your teachers have to be willing to give up control.”

And that, not the laptops, is the crux of the argument. To implement a sea change like this you have to make sure enough people are onboard with it, teachers, parents, students and board alike. Assuming there wasn’t a huge kerfuffle regarding the mass layoffs (and with 10% getting canned how could there not be), the remaining staff (no doubt suffering drooping morale due to the firings and imposed changes) would be required to completely reinvent their teaching techniques, which is hard for employees in any field. Creating such a huge reliance on computers could be tough for many staffers—especially for ones unadept with technology—without a lot of support and encouragement from appropriate quarters. Administrators have to be forward-thinking and inclusive: The Mooreville board negotiated a deal so that poor families could buy broadband internet access at home for $10 a month.

The story about Mooreville’s schools is interesting, but it’s more than just a story about a school board giving Mac computers to all the kids. It’s about a school program that underwent an all-encompassing change in educational strategy and managed to make it work. And that is the great achievement.

Smartasses and Doorstops

Laura I’ve recently been introduced1 to a scathingly funny blog called “Smartass Cripple”, by Chicago writer Mike Ervin, a quadriplegic who is, yes, very much a smartass. He is not one to get sanctimonious when writing about disability issues: He’s just as likely to take wickedly nasty potshots at himself and his “fellow cripples” as he is at Oprah, politicians, or the usual satirical targets. Needless to say, his blog is defiantly politically incorrect, occasionally juvenile, as well as filled with f-bombs and other strong language. Reader be warned.

But for all of his potty-mouth, Ervin brings up interesting and humorous takes on disability, unhampered by the need to feature uplifting stories about triumphant handicapped people who’ve succeeded despite adversity (cue the violins). Ervin’s columns often deal with the more offbeat details of disability, like how the length of one’s “independence stick” (a pointer that all the wheelchair kids at his old school used, enabling them to press elevator buttons) denoted how handicapped you are, and thus, how cool you were. This is the kind of snarky attitude that sadly is in short supply among publications/columnists on disability issues.

Ervin’s latest post is a good example (all quotes below are from this post.)

Whenever I go shopping and I see cheap shit made in foreign countries for slave wages, it really pisses me off. Those people are taking our goddam jobs from us! In America, cripples are the ones who are supposed to be making cheap shit for slave wages! It’s a grand tradition!

Ton of cripples still work in sheltered workshops. Whenever I see a wood doorstop I think about all the cripples who work in sheltered workshops because making wood doorstops seems like the kind of job a sheltered workshop would have its cripples do. A cripple cuts a block of wood down the middle kitty-corner and presto, two wood wedges. And then the cripple gets paid something like two cents per wedge.

This made me think (and not kindly) about the high school that Jon might’ve gone to starting this year. The Developmental Delay program at Monarch Park C.I. seemed to consist largely of kids sanding and painting woodwork in a workshop. This might be perfect for some kids, but it is absolutely unsuitable for Jon, being at the same time too challenging (because of his visual difficulties) and not challenging enough (mentally). The fact that they didn’t seem to care much that it took months—months!—for some kids to acclimatize to the place also rather appalled us.

Put me on a doorstop assembly line and I’d be a fuck up too. I’m sure Stephen Hawking couldn’t make a damn doorstop if his life depended on it. Why not take a little time to find out what a person does well and get them a job doing that?

Admittedly, the Monarch Park DD kids were doing other useful and varied jobs around the school as well (delivering periodicals to other classes, selling baked goods), but the overwhelming impression we got from our visit was negative—an indelible vision of all these wheelchair kids crammed into a woodworking sweatshop.

This underscores something I’ve worried about for the last few years, and as Jon gets older the feeling of dread gnaws a bigger and bigger hole at the pit of my stomach: Will Jon ever be able to work? How will he find work? Will his combination of disabilities preclude him from finding anything meaningful to do—most “successful” people with disabilities seem to have disabilities in either motor skills or mental ability, but not both. And throwing visual disabilities into the mix? Oy. Will it be “real” work or a “two cents per wedge” type situation? It’s less that I care about whether or not he can ever financially support himself—I’m resigned to the likelihood that he will not. Rather, will he be able to work at something that he’s reasonably happy with? Something that gives him a reason to get out of the house for a few hours, away from his tiresome parents?

Ervin goes on to tell of a guy with Tourette’s Syndrome suing an ex-employer under the Americans with Disabilities Act because he was fired from his job as a greeter. He lost, because obviously store greeters—disability or no—can’t make rude comments about customers. But Ervin correctly points out:

…[W]ho the hell is the Rhodes Scholar genius who decided to make him a greeter? Why didn’t someone sue that person for being an idiot?

Coincidentally, Jon’s teacher recently suggested that a possible job that Jon might someday be able to do is Wal-Mart greeter. Our reaction was a rather stunned, “huh,”—it was literally something that had never crossed our minds before. And then, “damn—maybe some day we’ll actually have to like Wal-Mart!”


1 Via the always edifying tweets of Roger Ebert, who is truly an indispensable Twitter resource.

Vision issues

LauraPeter Terry Pratchett, the fantasy writer, wrote a clear-headed and deeply personal article about having been diagnosed with Alzheimer’s. The type of dementia he has is called posterior cortical atrophy (PCA), apparently the “best” form of Alzheimer’s to have: memory and coherency are largely left unaffected (at least at the beginning), but visual acuity and skilled movements show a decline because the brain cells damage is focused on the region that controls visual processing.

On reading about PCA, I was struck by the similarities between it and the cortical visual impairment that Jon has, and the symptoms on one of the fact sheets put out by the UK Alzheimer’s Society could be a point-by-point description of Jon’s visual issues:

However, in people with PCA, visual problems are not due to problems with their eyes. Rather, the affected brain cannot interpret and process the information received from the person’s eyes, which are still healthy.

The visual problems experienced may vary widely but often include some or all of the following:

  • Difficulty recognising objects in pictures (for example household items in a catalogue, especially if the pictures were taken from obscure angles or the picture is incomplete).
  • Difficulty recognising faces (for example TV characters, friends, relatives).
  • Decline in spatial awareness, for example in judging distances and speeds. This might result in the person missing when reaching out to pick something up, finding it hard to press the correct numbers on a telephone, experiencing difficulties with driving or descending stairs, and in judging the speed of moving traffic. Stationary objects may also appear to move.
  • Difficulty moving from the end of one line to the beginning of the next when reading.
  • When reading, particular words or letters appear to move around or become superimposed over one another.
  • Difficulty in reading certain types of text (for example large print such as newspaper headlines, handwritten notes).
  • Experiencing increased sensitivity to bright light or shiny surfaces.
  • Experiencing double vision or feeling that their eyes are jerking around or not completely under their control.
  • Particular difficulty seeing clearly in fading or low light conditions.

Some problems may be particularly hard to understand – for instance small print may be easier to read than large print – or objects that are ‘just under someone’s nose’ are not recognised and then suddenly ‘seen’. These problems, especially if not clearly explained, may be a particular cause of frustration for those around the individual with PCA as well as for the individual themselves.

We can certainly vouch for the “hard to understand” bit. Two of Jon’s early teachers simply refused to understand Jon’s issues, ignoring strong suggestions by Jon’s vision consultant. One teacher dismissed concerns about laminating reading materials (because of the glare off the fluorescent lighting), and intentionally did so. Often people think that Jon’s turning his head away from the person speaking is a behavioural issue (“he’s not paying attention”) whereas it is actually proof that Jon is desperately trying to see the person – using any means he can – to overcome his nystagmus (involuntary eye movements). He often has to resort to using his peripheral vision in sidelong glances, which unsettles people. Jon’s eye specialist has warned us that we’ll have to stress this to all his new teachers, and we’ve tried to do this, with varying success.

Many people assume Jon’s visual difficulties are due to focusing issues in the eye (especially since Mom and Dad both wear glasses for nearsightedness), but his eyeballs are just fine. (As regular readers know he did need glasses for a time, but currently does not. Very strange.) It’s hard enough for us to understand the unpredictability of Jon’s cortical deficits, so no doubt it’s far harder for other, less closely-connected, people.

Jon’s behaviour – lack of close friends, inability to pretend, etc, has even been likened to autism by some (including one of his finest teachers). He does exhibit some autistic characteristics at times, but he would never be classified as autistic. But much of Jon’s odd behaviour is actually his coping with complex aspects of his damaged vision. Sometimes we wonder if he has much of an ability to distinguish faces, (a little like the stroke victim in Oliver Sacks’s The Man Who Mistook His Wife for a Hat). When Jon sees an animated TV character in a situation where a different voice actor has been hired, he pounces on it immediately. Is that his primary way of identifying people?

So articles like Pratchett’s give us a little more insight into the intricate perceptual processes that are taking place in our brains, and maybe get us a little closer to understanding how Jon is trying to decode his world.

Photon’s no Hoover

Laura We always joked that one of the reasons we got a dog was so we wouldn’t have to vacuum as often. As it turned out, Photon does her share of mooching in the park and at the dinner table, but that’s about it. And other than a couple of puppy teething mishaps she’s never really eaten non-food items (unlike a dog-park friend’s pooch, who’s managed to chow down on about four TV remotes; or the dog who ate the car starter fob, featured on the BBC a few years back).

Well, those Brits do love their dog-eats-whatever stories—and so do I—so here’s another one from the BBC about a dog who managed to scarf a $20,000 diamond. That’d buy an awful lot of kibble….

The Boy in the Moon, revisited

Laura A couple of years ago we posted (here and here) about Globe and Mail writer Ian Brown’s heartbreaking series of articles about his severely disabled son, Walker. Although most of Walker’s disabilities are much more profound than anything we’ve encountered, Brown wrote about issues, feelings, and thoughts that had an eerie resonance with us.

Brown has now expanded the articles into a book, The Boy in the Moon: A Father’s Search for His Disabled Son. An excerpt was recently posted on the Globe‘s site. Again we saw a disquieting parallel with our own life, when Brown writes about his home’s storage of huge amounts of old supplies and equipment, kept just in case they might be needed again. Also, rooms filled with unused clothing and toys (given to Walker by well-meaning relatives) that the family can’t bear to get rid of.

We have shelves and toyboxes filled with wonderful toys given to us by friends and relatives over the years—stuffed animals, puzzle games, Lego sets, trucks—that we hoped would get lovingly used and destroyed by Jon. Unfortunately he never had much interest in plush toys, trucks or games; and lacked the manual and visual dexterity for Lego and puzzles. But we couldn’t bring ourselves to get rid of them, rationalizing that maybe, one day he’d want to play with them….

Old toys
One of several old toy depositories littered throughout our house

The battle for chiropractic

Peter A month or two ago in his column in the Guardian, noted science-writer Simon Singh (who wrote a favourite of mine, The Code Book) laid a broadside against the chiropractic industry in Britain, as well as chiropractic in general. Based on the dubious history of chiropractic and the damning evidence of recent studies and key peer-review research, he criticized the industry’s claims of being able to treat many diseases. Furious, the British Chiropractic Association sued him for libel. Later the Association released their “evidence” list to shore up their case, none of which actually dealt with the issue at hand. In actual fact there is a great deal of evidence against specific claims (claiming chiropractic can treat children for ear infections, colic, asthma, feeding issues, etc.)

The libel trial held a preliminary hearing to determine the meaning of the BCA article. In a perplexing decision he judge decided that because Singh had used the adjective “bogus” to describe the treatments and had said that chiropractors had “happily promoted them”, he was accusing them of being deliberately dishonest. Singh argued otherwise. The judge indicated that he feels that is Singh guilty of libel, and the actual science has no part in this. Therefore, Singh was found guilty. That’s the antiquated world of British libel courts.

Singh has decided to fight. (He, not the Guardian, is paying for his own defence.) In response, the chiropractic organizations are in full retreat, one of the associations asking all of its members to take down their websites to avoid posting overreaching claims. One of the ways is that Singh is fighting is asking bloggers and websites to post the original article—now reviewed and edited slightly by lawyers.

So here it is.

Beware the Spinal Trap

Some practitioners claim it is a cure-all, but the research suggests chiropractic therapy has mixed results — and can even be lethal, says Simon Singh.

You might be surprised to know that the founder of chiropractic therapy, Daniel David Palmer, wrote that “99% of all diseases are caused by displaced vertebrae”. In the 1860s, Palmer began to develop his theory that the spine was involved in almost every illness because the spinal cord connects the brain to the rest of the body. Therefore any misalignment could cause a problem in distant parts of the body.

In fact, Palmer’s first chiropractic intervention supposedly cured a man who had been profoundly deaf for 17 years. His second treatment was equally strange, because he claimed that he treated a patient with heart trouble by correcting a displaced vertebra.

You might think that modern chiropractors restrict themselves to treating back problems, but in fact some still possess quite wacky ideas. The fundamentalists argue that they can cure anything, including helping treat children with colic, sleeping and feeding problems, frequent ear infections, asthma and prolonged crying — even though there is not a jot of evidence.

I can confidently label these assertions as utter nonsense because I have co-authored a book about alternative medicine with the world’s first professor of complementary medicine, Edzard Ernst. He learned chiropractic techniques himself and used them as a doctor. This is when he began to see the need for some critical evaluation. Among other projects, he examined the evidence from 70 trials exploring the benefits of chiropractic therapy in conditions unrelated to the back. He found no evidence to suggest that chiropractors could treat any such conditions.

But what about chiropractic in the context of treating back problems? Manipulating the spine can cure some problems, but results are mixed. To be fair, conventional approaches, such as physiotherapy, also struggle to treat back problems with any consistency. Nevertheless, conventional therapy is still preferable because of the serious dangers associated with chiropractic.

In 2001, a systematic review of five studies revealed that roughly half of all chiropractic patients experience temporary adverse effects, such as pain, numbness, stiffness, dizziness and headaches. These are relatively minor effects, but the frequency is very high, and this has to be weighed against the limited benefit offered by chiropractors.

More worryingly, the hallmark technique of the chiropractor, known as high-velocity, low-amplitude thrust, carries much more significant risks. This involves pushing joints beyond their natural range of motion by applying a short, sharp force. Although this is a safe procedure for most patients, others can suffer dislocations and fractures.

Worse still, manipulation of the neck can damage the vertebral arteries, which supply blood to the brain. So-called vertebral dissection can ultimately cut off the blood supply, which in turn can lead to a stroke and even death. Because there is usually a delay between the vertebral dissection and the blockage of blood to the brain, the link between chiropractic and strokes went unnoticed for many years. Recently, however, it has been possible to identify cases where spinal manipulation has certainly been the cause of vertebral dissection.

Laurie Mathiason was a 20-year-old Canadian waitress who visited a chiropractor 21 times between 1997 and 1998 to relieve her low-back pain. On her penultimate visit she complained of stiffness in her neck. That evening she began dropping plates at the restaurant, so she returned to the chiropractor. As the chiropractor manipulated her neck, Mathiason began to cry, her eyes started to roll, she foamed at the mouth and her body began to convulse. She was rushed to hospital, slipped into a coma and died three days later. At the inquest, the coroner declared: “Laurie died of a ruptured vertebral artery, which occurred in association with a chiropractic manipulation of the neck.”

This case is not unique. In Canada alone there have been several other women who have died after receiving chiropractic therapy, and Edzard Ernst has identified about 700 cases of serious complications among the medical literature. This should be a major concern for health officials, particularly as under-reporting will mean that the actual number of cases is much higher.

If spinal manipulation were a drug with such serious adverse effects and so little demonstrable benefit, then it would almost certainly have been taken off the market.

Simon Singh is a science writer in London and the co-author, with Edzard Ernst, of Trick or Treatment? Alternative Medicine on Trial. This is an edited version of an article published in The Guardian for which Singh is being personally sued for libel by the British Chiropractic Association.

There is a good follow-up article in today’s Guardian.

Of Cane Toads, Rabbits, Ants and Wolfpigeons

Peter I like juxtaposition. Recently, Britain’s The Guardian had an article on the past and present fun of environmental intervention in Australia, including the cane toad.

cane toad
Photo by Jiggs Images’, under the Creative Commons

The toads were intentionally introduced to Oz in 1935 to fight a beetle that had been accidentally introduced, and have since become the poster child for man’s meddling in the environment. While it isn’t especially interested in the beetles, it will eat anything smaller than it, kill anything bigger that messes with it, and try to mate with anything around its size. Even if it’s a sneaker. (For more on this whole muck-up, check out the fun documentary Cane Toads: An Unnatural History right here on the net.

Apparently Australia keeps trying to eradicate invaders biologically, only to have it screw up. Rabbits are a big problem as well: in the past they’ve introduced foxes (didn’t work) and myxomatosis (worked until the rabbits developed genetic immunity!)

rabbit
Photo by Brian Robert Marshall under this Creative Commons License.

The Guardian article quotes Professor Ian Lowe:

“The delusion that you can have effective biological control still seems very strong in Australia. People talk about managing environmental systems as if it’s no more complex than managing a jam factory. We should have learned from the cane toad that the cure is often worse than the disease,” he said.

So into this mix I throw my favourite web April Fools joke from this year:
Apparently Qualcomm reports it has developed a new form of mobile WiFi network system—in flocks of pigeons! But to protect the pigeons from attack, they genetically combined them with wolves. Which they admit, could become a problem…but they’ve got a solution. And it’s very Australia-like.

wolfpigeon april fools joke

Link: Qualcomm’s Wireless Convergence web page
Sadly, offline, but I’ve found old elements and references to the corporate joke:
Qualcomm’s Wireless Convergence Project Images
Qualcomm’s Wireless Convergence Movie

Love the incorporated movie too. Those engineering drawings weren’t quite what I expected…