All posts by Peter

Gearing Up for the Season

PeterWe’ve been looking at a lot of new gear for Jon in recent days. Some good, some—well, in the end it will be good.

Most exciting is the fact that Jon is being prescribed a walker! This video features a demo model of the Nurmi Neo by Otto Bock. We tried another walker that was heavier and more restrictive, but this one was better, and so the byzantine process to get one has begun. 🙂

[Editor’s Note: As of July 2012, I’ve found a second video from the same session!]

Jon should be getting his new AFO’s in the next few days. We don’t talk about these much, but they’re the custom braces that keep him from pointing his toes and losing range in his ankles and achilles tendons. Jon’s isn’t especially bad in this department, but they’re standard issue for kids with high tone in their legs, and he wears them daily at school.

Peter

We’ve started looking at new trikes. Lots to choose from, lots of vendors too. And the theraputic trike prices have come way down from the $2500 for his first therapeutic trike 5 years ago, so that’s nice. More comparison shopping to go.

And last up was the orthodontist, where we chatted with her about the xrays (Jon isn’t missing any permanent teeth like Laura) and did up the game plan. Step #1: All of Jon’s baby eye teeth have to go, to make room for his front teeth for the short term. And in 9 months or so the hardware starts.

And I didn’t even mention the fact that he’s growing so fast, we’re in preliminaries for a new wheelchair!

Reading Update

Peter Milestone time: last week Jon moved to the Grade 6 textbook.

Was it only three years ago this month, in Grade 3, that he moved into the second of two Grade 1 readers?

In the recent past, each new textbook comes with a very dull tradition: standing in the local copy shop and make a 120% duplicate of the 550-pages (with an iPod this time, whew!) for home use. While we read at home every weekend, Jon hasn’t been allowed to take the text home for years now: the texts are long out of print and the school has only one copy of them (since very few kids at his school have made it to this level). So his teacher slips us the book ahead of time and I get to work.

Reading and spelling are where Jon soars academically. His spelling lists have wild words like oceanography and veterinarian on them (in his tests, they must be used in a sentence!). We’re at the point in reading where his reading skills are actually bumping their little heads on the ceiling of Jon’s intellectual comprehension, but that tends to lead him to further intellectual development, so it’s all good.

It’s been worth all the time, hard work and tantrums so far.

Catching Up

Peter Sorry for the lack of blogging, work’s been crazy here. And when we’re not working for money, we’re trying to get some other things started. I know, I know, boo hoo. Anything not to clean the house.

So, where did we leave off? Ah, yes. The ROM.

Well, both due to paternal instinct and the fact that I had already hinted something to Jon (so he was nagging me every two seconds!!), when we got home I called Rogers.

You see, I had noticed a Rogers ad boasting a new way of picking channels.

clip of ad claiming single extra channels for $2.79

During this year’s trip to Ottawa, Jon was once again transfixed by Météo Média on any TV he could find with it. Which was most, since it is part of basic cable in the Ottawa region (but NOT in outside of Ottawa). So given the Rogers ad, I thought it might be 36 or so bucks a year well spent.

Naà¯vely, I thought this ad meant I could pick up a single extra channel for $2.79. When I chatted with Rogers, it became apparent that this claim doesn’t mean what you think it means. I still don’t understand how it can work, but suffice it to say that we’d have to buy a package for seven bucks a month.

Ack.

The Rogers tech, sensing she had to sweeten this, took the route of all good opiate dealers, and immediately hooked the channel in free for three months. I suddenly heard Jon call from the other room in a voice so stressed it sounded like someone was throttling him. “Dad! Dad! It’s…on! It’s on, it’s on!” Apparently, she hit the vein.

So, two weeks later Jon is still watching it, even more than his beloved Weather Network, and he’s picked up the days of the week. Example from yesterday: “Hey Dad, on mardi can I have computer?

ROM

Jon
Jon looks down on the camera, while the Royal Ontario Museum crystal hangs over him

Peter Between snow and good old freelance work, we were stuck inside the first half of March Break, but we finally got out late in the week. We decided to head out to the ROM to see how Jon would take to dinosaur skeletons and other fun museum stuff in the new ROM crystal.

We talked a good game in line. Maybe we’d even spring for a membership, if he liked it. We could come back often…

Welllll, not so much. Jon was prepped and ready, and looked at the first dinosaur skeleton we happened upon, a velociraptor-esque creature of some kind, and tried to figure it out, to parse it. It was very, very difficult for him. I pointed out the teeth and claws, and he studied them, but even then you could see him starting to shut down.

Barosaurus skeleton
The barosaurus

Later I pointed the enormous barosaurus’s tail, the stegosaurus’s tiny head, the ancient sea turtle and the pterosaur above us. And he’d gamely look at the shapes or pieces, and maybe he even made them out, but the complexity of the skeletal forms was too difficult to get a handle on. Pretty quickly his eyes (that is, his visual cortex) were tired, and he retreated into his iPod. This was okay: the room was quickly filling and the noise (which tends to compress Jon) was bouncing off the echo-y angled walls. But I should add that Jon did occasionally try to look, and he was very patient and didn’t get upset at all.

Jon
Jon retreats into his iPod, behind a really fake smile.

dinosaur with big frilled skull
If Pinky and the Brain were dinosaurs, I know who this Pachycephalosaurus would be…

pterosaur with wing leather
Oooh, check out the wing leather impression left in the fossil. They really did have a diamond-shaped membrane at the end of their tails!

archeopteryx
Ten points to the first person who comments the name of this one below. Ten more points for the species name, and 50 for someone who can say why without looking it up. You’re on nerd’s honour. Anybody?

After the two rooms of dinosaurs and mammals, we scooted into another room. It was filled with antique typewriters prior to any kind of standardization. I tried to get Jon to guess what was in the display cases, but even as he looked at them all he could guess was dinosaurs, and he was a tad stressed. I asked if he could see letters and he blinked and said “Keyboard…” and all of the stress drained out of him. He was in his element. I explained that they were typewriters, what we had before we had computers, but he cut me off “Gingi has a typewriter!” He knew all about typewriters. Gingi is his school’s amazing art teacher (and, while I’m here, a victim of poorly thought out administrative cutbacks that has made her job basically untenable. Don’t get me started.)

Jon in the Early Typewriter room
Fake smile #2, but he’s way more relaxed, even enjoyed reading the sign behind him.

We headed down to the Darwin show (no cameras allowed). Jon was patient and mainly focused on his iPod while we explored the show. It took you through the man’s life with many facsimiles and a few real holograph writings, and possessions (and a lot of his flower pressings!). I was fascinated by the latter half of his life, as he sat on his realization, read a great deal on all sorts of topics and examined his theory from a great many points of view. He was incredibly prescient about the immense storm this would cause on society, and sadly still does. Shockingly (to me) the touring show has not had a single corporate sponsor since it started at the American Museum of Natural History in 2005. When it got to Toronto, it picked up its first two sponsors: the Humanist Association of Canada and The United Church Observer, which suggests that I could probably buy a sponsorship myself, with grocery money. An extremely sad commentary on both the intellects and the cajones of today’s corporations.

In the end, we headed out for a grand lunch of hot dogs and Greg’s Ice Cream. Greg was even there, so we got to chat with him (he and Jon talked new puppies). A fine end to March Break week.

Attitude

Peter Jon, when self-motivated, can do his spelling list (typing the 10 words three times each) in about 3 minutes. Sometimes however, he malingers for upwards of 40 minutes, grumbling and whiny. Then there are days like this: he more or less gets down to work, but under protest.

Jon in front of his computer, having typed an entire word separated by commas

I laughed out loud then ran for the camera. He had erased a couple of the commas by the time I got back, but you can see the sneaky grin.

Also, lately, any time either Laura and I make an exclamation (ie Damn!, I don’t believe it!, What the…?), Jon immediately says, “What is it?” and wants to know what the problem is. Doesn’t always understand the explanation, but he suddenly wants know everything that’s going on. Very nice.